I am a social Entrepreneur a social-Preneur. I am a thalidomider and a wheelchair user. I am a biochemist and a bioethicist. I am a scientist and an activist. I work on issues related to bioethics, health research, disabled and other marginalized people's and human rights, governance of science and technology and evaluation of new and emerging technologies. I am the founder of the International Centre for Bioethics, Culture and Disability and of the International Network on Bioethics and Disability. I believe that a wide open public debate on how the above issues affect society and marginalized groups is the only way to develop safeguards against abuse. I believe that so far marginalized groups are rarely heard in this debate. Therefore I try to increase the visibility of marginalized groups on governmental, academic, civil society, national and international level. I hope that the tools I offer (webpage, listserves, briefing papers, workshops, lectures and online courses) help people from marginalized groups to increase their knowledge and I hope my tools help others to obtain a more differentiated picture of people from marginalized groups and how the issues affect them.
